Ulcerative colitis, often shortened to UC, can affect much more than the time you spend in the bathroom. Understanding the basics can help you explain your experience and make sense of the plan your team recommends.
What ulcerative colitis affects
Ulcerative colitis is a chronic form of inflammatory bowel disease. It causes inflammation and ulcers in the inner lining of the large intestine. The large intestine includes the colon and rectum.
The amount of intestine affected and the severity of disease vary. Ask your clinician to explain your own diagnosis rather than assuming another person's UC experience will match yours.
Recognizing your experience
Common symptoms include diarrhea, blood in the stool, abdominal discomfort and bowel urgency. Some people experience fatigue, fever, nausea or weight loss. Symptoms can change over time, with periods of flares and remission.
Assessment may include your medical history, examination, blood and stool tests, and endoscopy. Tell your team about changes rather than trying to determine the meaning of every symptom yourself.
Describe what a normal day asks of you
You do not need an elaborate explanation. 'I cannot get through the drive to work comfortably' or 'I wake up worried about needing the bathroom' gives your team something concrete to discuss. Include the concern you tend to leave until the end of the visit.
- What part of my colon is affected?
- What are we monitoring between appointments?
- What would count as progress with this treatment?
- Which symptoms or changes should I report promptly?
- How can I contact someone when the office is closed?
Before you leave your appointment
Check that you understand the next step, who will arrange it and when you should expect to hear back. If a term is unfamiliar, ask for it in everyday language. Keep the plan somewhere you can find it without searching through old messages.